Stephanie Christopher MA, CCRC, FACRP

Program Director, Providence St. Joseph

Stephanie Christopher is the Associate Director of Research Programs at the National Organization for Rare Disorders (NORD), where she oversees the IAMRARE™ patient-powered registry program, which allows patients and organizations to inform and shape medical research for rare diseases by launching high-quality, customized registries to collect the data needed to define the natural progression of their disease.

Prior to joining NORD, Stephanie helped advance real-world evidence research at one of the largest healthcare systems in the western US, helped develop tools to advance patient input in the regulatory review of new medical technologies and was part of a research team seeking to improve the quality of communication between physicians and patients.

Stephanie received her Bachelor’s degree from Pacific Lutheran University (Tacoma, WA) and Master’s from Marquette University (Milwaukee, WI). Stephanie is a Certified Clinical Research Coordinator (CCRC) and a Fellow of the Association of Clinical Research Professionals (FACRP)