ACRP 2018 Meeting & Expo

115 - The Patient Voice: Improving Patient Experience by Understanding Patient Perspective

Apr 28, 2018 10:15am ‐ Apr 28, 2018 11:15am


Credits: None available.

Members: $25.00
Standard: $75.00

Description

In a global survey conducted in conjunction with CISCRP, TransCelerate Biopharma, Inc. found that the vast majority (94%) of patients and caregivers felt that being aware of clinical trials conducted in their community was important. However, 79% of respondents reported being unaware of clinical trials for the condition they were most interested in. Explore how a consortium of leading biopharmaceutical companies has been utilizing this survey and other feedback mechanisms, such as Patient Advisory Boards, to further understand the patient perspective as it works to close this gap and design additional solutions to improve the patient experience. Insights from this global survey will be shared in parallel with what TransCelerate is doing to decrease patient burden, enable better-informed patients, and improve clinical research awareness, study participation, and engagement.

Learning Objectives:

  • Share key insights from a global survey conducted of 3,000+ global patients and caregivers around their perceptions of clinical trials, informed consent processes, electronic medicine labeling, and trial information sharing
  • Understand how patient feedback is being used to inform several key initiatives undertaken by TransCelerate BioPharma Inc., with a goal of improving the patient experience in clinical research
  • Describe best practices and learnings around how Patient Advisory Boards and other patient feedback channels can be utilized in the design of clinical trials and solutions

Speaker(s):

Credits Available


The Patient Voice: Improving Patient Experience by Understanding Patient Perspective

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